Marinella Nava

Marinella found Donna's web site in September 2004. Marinella is our first 'International' Survivor that is listed.

Marinella went to be with the
Lord on January 26, 2009.

If you would like to email Marinella's husband, please do so by clicking here.

 

Updates Below; Please scroll down!


My name is Marinella Nava, and I live in Milan, Italy. This is my story.

On June 30, 2002, after a period of strange headaches and a sudden seizure, diagnosis was: glioblastoma multiforme on the right frontal lobe.

On July, 4, 2002 I underwent first craniotomy with "macroscopically total" surgical resection of tumoral mass (Neurosurgery Department at San Raffaele Hospital, Milan)

Following surgery (August, 2002), I had conventional radiotherapy (maximum dosage: 30 applications) and various rounds of chemotherapy (Temodar).

Second craniotomy (January 2003) after MRI showing recurrency of disease (but biopsy after surgery revealed that the mass removed was less than 10% active tumoral cells and the rest radionecrotic tissue).

During surgery, a Rickham reservoir was placed to allow locoregional radioimmunotherapy with monoclonal antibodies (Y90-Biotin) by Dr. Giovanni Paganelliís equipe at IEO (European Institute of Oncology - Milan).

From Febraury 2003 to this day, I had five treatments with monoclonal antibodies alternated with rounds of chemotherapy with Temodar; four MRIs showed that small residual fringe of active tumoral tissue remains substantially stable.

Recently, a vast edema around the surgical cavity, causing pressure on the right side of the brain and consequently affecting mobility of left arm and leg, has been effectively treated with Mannitol and Soldesam.

Starting from november 2003, I had other serious problems: the surgical scar partially re-opened and wonít heal, due to extreme skin fragility as a long-term side effect of radiations, and to a serious infection under the skull plaque, probably caused by the Rickham reservoir. Four surgical treatments and high doses of antibiotics were necessary to solve this problem. Unfortunately, the reservoir had to be removed, thus precluding further locoregional radioimmunotherapy (but anyway I could have had only one more, so I didnít lose much!).

Now Iím still on Temodar and feel quite well. Next MRI will be on September, 7, 2004 and I hope in good news.

Note: We had an email from Marinella - and her MRI was negative!!



Updated December 20, 2004


Hi Donna and Frank

I'm very happy because my MRI scan (yesterday) was good! I don't know when my next scan will be, I suppose 3-4 months from now, I'll let you know. I'm going on with Temodar, though it makes me sicker than it did before, but consider that this is the 21st cycle... Doctor told me that I should have 24 then stop for a while. But in general I'm feeling quite well, but I repeat i'm very happy for my last scan.

I'm going around, too, with my husband Michael (Michele): this year we've been in Austria, Sicily, Budapest (Hungary), Barcelona (Spain). Saluti e baci e buon Natale (that's "best wishes and kisses and Merry Christmas" in Italian). Marinella

What about you, are you all doing well?

Hope to hear you soon.

Best wishes,

Marinella

 


Update January 15, 2005


Dear Donna and Frank,

I don't know when my next scan will be, I suppose 3-4 months from now, I'll let you know. I'm going on with Temodar, though it makes me sicker than it did before, but consider that this is the 21st cycle... Doctor told me that I should have 24 then stop for a while. But in general I'm feeling quite well, but I repeat i'm very happy for my last scan. I'm going around, too, with my husband Michael (Michele): this year we've been in Austria, Sicily, Budapest (Hungary), Barcelona (Spain).

Salutie baci e buon Natale (that's "best wishes and kisses and Merry Christmas" in Italian).

Marinella


Update April 7, 2005


Dear Donna and Frank,

I had a new MRI scan on April 4 and it was clear again, so we're very happy. Can you please update my page, so all my friends will know? Thank you very much. I pray for you aand, please you pray for me. thank you again.

Marinella


 

Update June 15, 2005

 

Dear Donna and Frank,

How are you? I''ve had my last scan on 06.09.2005 and it was clear!

Marinella



Updated September 29, 2005


Dear Donna and Frank,

I'm Marinella Nava from Italy. Today I've had the results of my latest RM scan, the second after suspension of Temodar chemotherapy, and it was clear. I'm very happy! I hope all of you are well. Thanks a lot,

Marinella


Updated January 19, 2006

 

Dear Frank and Donna,

I'm Marinella from Milan, Italy. I've had my scan on 01.12 and it's clear. I'm very happy. Thank you very much!

Marinella

We also had the following email conversation...

Hi Marinella!!!! Wonderful News!!!!!! This is great!!! 3 and 1/2 years now!!! Awesome!!! Praise God for your miracle!!! Thanks for the update. Do you have folks in Italy look at your web page?

Yes, there are folks in Italy that look at my web page, but also from abroad. Some also wrote me (two from Rome, one from Florence, one from Great Britain and one from Australia) looking for advice or information for themselves or parents and relatives and I'm still in contact with them, following their stories. I'm glad to be helpful, if I can, thanks to your site.

Best wishes, Marinella


Updated May 18, 2006

Dear Donna and Frank,

I'm Marinella Nava from Italy. Today I've had the results of my latest RM scan, and it was clear. I'm very happy!

I hope all of you are well.

Thanks a lot,

Marinella

FOUR YEARS!!!!


September 11, 2006

Dear Donna and Frank,

I'm Marinella from Italy. How are you? I''ve had my laast scan on 06.09.2006 and it was clear. Frank, please could update my page?

Thank you very much.

Marinella


Dear Donna and Frank

I'm Marinella from Italy. How are you? I''ve had my last scan on 12.12.2006 and it was clear. I'm very happy. Happy new year!!!!

Thank you very much.

Marinella


Dear Donna and Frank

How are you? I''ve had my last scan on 12.03.2007 and it was clear.

Thank you very much.

Marinella


Dear Donna and Frank,

I'm Marinella from Italy. How are you? I''ve had my laast scan on 30.08.2007 and it was again clear.

Thank you very much.

Marinella


April 28, 2008

Dear Donna and Frank,

How are you? My MRI scan of April.23.2008 is ok.

Best wishes

Marinella


September 16, 2008

Dear Frank, how are you?

I hope well, and your boys also, after the sad days you've passed. We always think about you and Donna, and will always remember her. I wanted to let you know that I've had my scan some days ago, and it was clear.

Will you continue updating the site? I really hope so, so we can still know about each other. Thanks for having kept us constantly informed of what was happening, and for all you've been doing.

With love,

Marinella


This is final update - I received this from Marinella's husband, Michele on February 7, 2009


Dear Frank,

I'm Michele, Marinella's husband. Unfortunately, I have very bad and sad news to give you. In November Ė two months after the last, completely clear RM Ė Marinella had a recurrance. She was operated again and started a new cycle of chemotherapy with Temodar, but all was useless. Parts of the tumor that the surgeon could not remove had already started to infiltrate deep in her brain and her conditions got worser day by day. At 8.30 am, Monday, January 26, she passed away. During the last week she wasn't conscious any more, constantly immersed in a profound sleep, till she simply stopped breathing, while I was keeping my hand on her forehead.

I still can't believe she isn't here any more Ė but when reality flashes through my mind, an unbearable pain literally tears my heart apart. She was my love and joy, the dear companion of my life, and I miss her so much.

You can understand how I feel. And I often thought, these days, how Marinella and Donna shared a common destiny. When we heard about Donna, Marinella and I were both shocked , and she said "Seven years! It'll be the same for me?" And so it was.

You never met her, but 'm sure you felt she was your friend. And I know you will remember her forever: she deserves it, because she was a beautiful woman with a beautiful heart and mind. Let's keep in touch, letting each other know how we're doing.

My e-mail is: michele@studiocicero.it Best wishes, Michele

 

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